I had a doctor appointment on Friday. My doctor was very nice and very responsive to my concerns. She didn't have any answers though. She's going to talk to another doctor. But no one has any answers for me. They talk about clinical trials but I'm one of those patients who apparently has to deal with waiting for the outcomes of clinical trails. I'm a difficult patient who challenges her doctors. Some doctors look forward to seeing me some doctors dread hearing from me.
I thought maybe if I let them do surgery like they'd wanted to in the hospital I'd be allowed to come off the shots. I was wrong. They wont let me come off the shots. Always shots for forever and ever. Or at least until I'm ready to go into the light.
But there are drugs in trial. The first of them failed spectacularly. It caused amputations. Amputations! The second drug it's doing well. It's going well in trials. My husband wants me to wait until it's been out for a year without troubles. A year so that anything they missed might be caught. I guess I can do this for a year. One year. I can give myself shots that cause bruises and nausea for one year cause there is an end in sight.
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